Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease. 12 min read What Is Cystic Fibrosis? Cystic ...
As someone who does not benefit from any CFTR modulators, I only have one option for improving my lung function — transplant. But just because it’s my only choice does not mean it’s an easy one to ...
When my son was diagnosed with cystic fibrosis, I was taught everything I needed to know about CF…except how to navigate the anxiety he experiences. As he’s gotten older, I’ve struggled to know how to ...
When I first started dating my husband, who has CF, it felt like diving straight into the deep end of the CF world. I was completely overwhelmed at first, but everything changed when I discovered a ...
I’ve always believed that I had a story to share — this is the time to do so. I was born in 1984 to a set of parents with different lifestyles, not knowing how my life would turn out. I’d love to tell ...
Receiving a late diagnosis of cystic fibrosis meant I spent my childhood and young adulthood being told that how I was feeling — both physically and emotionally — was wrong, and that I was “young” and ...
Throughout my childhood, I was thin and underweight thanks to cystic fibrosis. When my mother, my sister, and I would go to the trails near our house to exercise, I hated running. I could barely make ...
Growing up with CF, I always felt like my life was a ticking time bomb. Growing up, I didn’t really think about my own mortality and my life span; that all changed when I turned 18. I vividly remember ...
Who Needs Vascular Access Devices? Vascular access devices may help people with cystic fibrosis who need intravenous (IV) antibiotic treatments for more than just a few days, such as during an ...
The health care professionals that make up your CF care team are experts in CF care. But you are the expert on the daily challenges of living with your CF. That means you play an essential role with ...
The Arkansas/West Tennessee Chapter of the Cystic Fibrosis Foundation welcomes you! Our chapter has offices in Little Rock, Northwest Arkansas, and Memphis. We cover the state of Arkansas and western ...