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Pompe Disease in India | How poor awareness, misdiagnosis and expensive treatment options are affecting patients of this rare disease
India’s fight against rare diseases needs more focus on awareness and diagnosis: GlobalData The scientist also revealed that it is crucial to understand that Pompe disease is one of many rare ...
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Northern Ontario mom trying to raise awareness, hope for families dealing with rare diseases
"It's really important for us to raise awareness about Pompe disease as well as all the rare diseases that exist out there," she said. "Before we became part of the rare disease community ...