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Dec 20, 2024 · Hear stories and find community at BreatheCon. BreatheCon is a two-day virtual conference created by and for adults with CF. Register today to hear inspiring firsthand accounts, share your own story, and spend time with others who understand life with CF.
Patient Registry - Cystic Fibrosis Foundation
The CF Foundation Patient Registry collects information on the health status of people with cystic fibrosis who receive care in CF Foundation-accredited care centers and agree to participate in the Registry. This information is used to create CF care guidelines, assist care teams providing care to individuals with CF, and guide quality improvement initiatives at care centers.
Get Help With CF Foundation Compass - Cystic Fibrosis Foundation
Compass is a personalized, one-on-one service that provides people living with cystic fibrosis and their families a partner in dealing with challenges related to life with CF, no matter where you are in your CF journey.; AIRS-accredited Compass case managers help with complex challenges, including understanding insurance basics, troubleshooting …
About Us - Cystic Fibrosis Foundation
The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.
Clinical Care Guidelines - Cystic Fibrosis Foundation
To ensure that people with CF continue to experience steady gains in length and quality of life, the Foundation helps its accredited care centers provide a standard of CF care with guidelines. We base guidelines on the latest research, medical evidence, and …
Find a Local Chapter - Cystic Fibrosis Foundation
We have about 70 chapters and offices across the country that work diligently to raise funds and support our community in the search for a cure. They host events (including virtually and outdoors) and serve as a hub for the CF community. Get to know them!
2023. CYSTIC FIBROSIS FOUNDATION. PATIENT REGISTRY HIGHLIGHTS. 33,288. People in the Registry. 100,648. Clinic Visits. 12,569. Telehealth Visits. 10,164. Hospitalizations
Support - Cystic Fibrosis Foundation
CF Foundation Compass is a service that helps people with CF and their families with navigating insurance options, connecting to legal information and experts, finding available financial resources, and tackling other life issues.
Your CF Care Team - Cystic Fibrosis Foundation
Because cystic fibrosis is a complex disease, it requires a team approach with you or your child at the center. Your CF care team includes a group of CF health care professionals who partner with you to provide specialized, comprehensive CF care.
Our Mission - Cystic Fibrosis Foundation
The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.